Gastroschisis

Hi, my name’s Katie and my partner is Rob. We had a dating scan on the 23rd April, our baby was 10wks 6days, everything appeared normal but was told that I needed to come back in a fortnight as they… Read more ›

Hey, I’m doing a sponsored skydive in honor of babies born with gastroschsis and would be extremely grateful for any donations! The link to sponsor me is http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=DanielleJordanSkydive The money I raise will be going to the Neonatal Unit at St… Read more ›

My name is Racheal and i am 30 weeks pregnant and i was told when i was 20weeks that my baby has gastrochisis. I have 2 healthy kids already,so this is my 3rd pregnancy, i have never heard of gastrochisis until… Read more ›

I was about 5 months pregnant with twins when my son was diagnosed with gastroschisis. I have never heard of this before. They were born by c-section at 33 weeks.  First he was siloed (spelling?) which used gravity to lay… Read more ›

My name is Amber and I’m here to share my son’s journey with gastroschisis. I was 16 weeks pregnant when my husband and I found out we were expecting. Yes, I said 16. We had no idea this sweet sweet… Read more ›

I was born in 1979 in Southampton with Gastroschisis and a double erupted hernia. All I really know is I had a fused bowel, and a blood transfusion. I have a 22cm vertical scar on my abdomen, with puncture scars around it.… Read more ›

Hi! My name is Faye, and I’m a seventeen year old girl and I’m wanting advice and information on reconstructive surgery having suffered from Gastroschisis myself! I have a scar around the size of a two pound coin,with a horizontal… Read more ›

Hey my name is Darby..Im 15 and I am twin! I was the one that ended up with the Gastroschisis. He had nothing wrong with him except we were both premature and a little under weight. Now that we are… Read more ›

This is quite long but I thought it might be useful as I really needed to see what other people had been through when I first found out what gastroschisis was…. I was told at my 20 week scan that… Read more ›

Hi there I have been reading some of these posts and see that most of them are from parents with young children or unborn. i just wanted to tell my story in few words. I was born in Iceland 1981… Read more ›

Hello there! My name is Rosie and I am 21 years old. I am a drama student from Glasgow, Scotland. I was born with gastroschisis just like a lot of you. At the moment I am making a piece of… Read more ›

Hi…my name’s Angel and I’m currently 16 years old. I was born with gastroschisis on Feb. 17, 1996 and if I recall correctly, got my surgery(ies?) done at Children’s Memorial in Chicago and stayed in the hospital for 5 weeks… Read more ›

hey fellow survivors. my name is Aislynn and I’m 14. i’ve always thought of myself as unique and different and I’m quite glad I found this site. it makes me feel TONS better knowing so many others know what i’ve… Read more ›

I was born with gastroschisis in the mid 1980s. I made it through all of my surgeries well. Despite losing about 2/3 of my intestines and two ugly scars across my abdomen, I’ve been pretty blessed not to have any… Read more ›

Hi I’m 20 yrs old/single mom and found out my babygirl had gastro at about 20 weeks, and I found out I was pregnant that day too so it was truly shocking for me. I have millions of questions, but… Read more ›

New to the site.   My daughters baby was diagnosed with gastroschisis at 12 weeks, we researched the topic and were quietly confident regarding what would happen once the baby is born.   At 18 weeks my daughter had a… Read more ›

(Lets start from the beginning then later I will ask questions that I wonder if anyone could help me with.) – While still in my mother’s womb I was diagnosed with a birth defect called Gastroschisis at thirty weeks. Gastroschisis… Read more ›

Hi everyone. My son was born in Jan this year with gastroschisis. He lost 45% of his bowel and had a stoma for 10 weeks. He spent 13weeks in hospital. I have now set up a support group on Facebook… Read more ›

I am a 22 years old, and pregnant with my first born. I was born with gastroschisis in 1989, and Im wondering what the odds are for my baby being born with the same condition

Hi my name is noah, I am 10 years old and i was born with gastroschisis. If anyone has any specific questions just for kids, let me know!