Gastroschisis Support, Resources, Videos and Member Stories 

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what’s your story?

My name Is chelsey, I am 19 years old. I was born with gastroschisis and have never met or talked to anyone else that was born with the same thing. I’ve never seen any baby pictures of myself when I was born because everything got stolen. I have a huge scar from my hip straight

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anyone on this side of the fence?

seems most posts are dealing with scars and mothers to be, but what about the complications later in life. i went through two surguries in my 20′s not to mention the two within the first two months of life. as i have reached 30 i have come to find it becoming more difficult to stay

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Hi, im wanting reconstructive surgery. Has people had this. Good/Bad experiences.

Hi, im 22 and was born with gastroschisis. I am currently trying to get reconstructive surgery because i hate my scar (and i know people say embrace it but thats not going to happen, its causing me lots of depression and has from when i knew i was different) Has anybody had reconstructive surgery. Did

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New Profile Boxes for All!

I have noticed more and more that a few of you are wanting to contact each other via Facebook, twitter etc so along with a brand new profile box that goes at the end of everyones contributions you will be able to see links to the contributors facebook, twitter, Google+ etc. You will also be

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Gastroschisis on Facebook and Twitter

Hi all, it’s not often I post, I am more in the background approving posts and comments and generally nodding at all of your stories when they have been so similar to ours. A quick update to the changes to the site over the past few days, you can obviously see the new design and

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Please Help!!

We found out about a month ago that our baby has Gastrochisis an after struggeling with this for a period we decided to activly gather as much info as possible but I have a few questions that would love some 1 who has gone through it all themselves to comment on: First of all my

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genetic tests / hair sample testing

Has anyone had genetic tests done in relation to Gastroschisis – if so what tests? I read something on a post about parent’s hair sample testing but can’t find the post now. Has anyone done this? How long after the baby is born is it done?

 
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Born with gastroschisis & now pregnant myself

I was born with Gastroschisis in 1991 – my intestines were outside of my body and I underwent immediate surgery after birth to place them back inside. It wasn’t handled like in most cases where the intestines are allowed to fal back in slowly & I have a scar the entire length of my abdomen.

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my gastroschisis birth and breastfeeding story

My son was diagnosed in utero with Gastroschisis at 14 weeks. It was devastating news for us, we had a history of miscarriage and as a result we were having frequent scans, up till then waiting for a scan was terrifying, we kept thinking there would be no heartbeat like with our other pregnancies. Then

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Associated Conditions

This is my first post. I haven’t posted my story yet, but hope to shortly when I have time – briefly our son of 7 months was born with Gastroschis – we spent the first 9 weeks in hospital. He is exclusively breastfed and doing wonderfully well. The reason I am posting is we would

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Possible effects of gastrochisis

Hi, I’m 18 and was born with gastroschisis. I’ve been quite ill recently firstly with really strong lower stomach pains which caused me to become really upset and sick. I was then diagnosed with glandular fever and got the same stomach pains again. I don’t know whether my immune system is down at the moment

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29 weeks pregnant. 19 years old. Gastrochisis.

My name is Steph, I’m 19, and I am 29 weeks pregnant. At my scan ( 21 weeks approx ) I was told our little baby had a condition called Gastrochisis.  After crying and screaming the place down, I was referred to KEMH in Subiaco.  There, me and the baby have excellent care.  I have

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Looking for advice and peoples experiences

Hi Every 1. I’ve just been to my 12 week scan an was advised that our baby has Gastroschisis.  I was absolutley devasted at first as the whole thing seems scary and extremely daunting.  After reading some of the storys on this website an others i actually feel a tiny bit better about the whole

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My two year old miracle!

Hello everyone! My name is Brittani. I have posted my sons birth story here under a different screen name (I no longer have access to that account) but I wanted to take a moment and update everyone! My little miracle will be TWO soon!! I cannot even believe it! Time has just flown by! Sev

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Slowly getting there!!

Well my Boy is 5 weeks old now and is being cared for by the great staff at the Royal Belfast hospital for sick children. He has had a couple of infections that have set him back but hopefuly we’ve turned a corner and he will gradualy start to improve. He has been through alot

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I don’t think of all the misery but of the beauty that still remains…

Hello world! I’m Olivia Lillian and I am a gastroschisis survivor. I’m here to share my story and meet other people who have experienced the same thing. It’s nice to hear other people’s story and know I’m not the only one. I’m currently waiting for my medical records from my birth, but so far I

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my first post.

hi my name is jasmine, i was born with gastroschisis in 1993, i decided to start researching some things about this condition just this year because i became quite interested in what was going on there. growing up i was teased and inspected you could say by other kids because of how weird it looked,

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gastoschisis

hey, i have a son that was born with gastroschisis. he is now 4, 5 in december! i was just wondering what problems people hav had later in life if any, nd wat i should be aware of!? i worry alot nd like 2 know wat i might hav 2 deal with if any problem

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17 and healthy

Hello to all, I was 20 weeks when the nurse called me to inform me that my baby would be born with gastroshisis.  I was confused and scared about what that was.  I did my research to ease my mind on what was to come my way and decided to go on with my pregnancy. 

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21 & Amazing.

Im 21 years old. i was born in 1990 the middle child of alot of siblings. and the only one born with Gastroschisis. the last time i had surgery because of this was when i was 3 years old i got severly dehydrated because of a blockage in my intestines. i have a wonderful 4

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