Gastroschisis(gas.tros.chi.sis) Support and Resources

I was born in 1975 with gastrochisis. I have been trying to get pregnant for years.  When I was 29 I got pregnant and it only lasted 8 weeks. I am starting to lose hope.

Is there anyone out there who got pregnant and carried to full term? Was it a good pregnancy? I have a lot of questions.

I would like to here your stories. You may email me at eliasjen@yahoo.com

Thanks Jennifer

Hailey is now almost 11 weeks old. We just wanted to take the time to thank everyone who contributes to this website. When we first heard that Hailey had gastroschisis I was a mess. Everyone seemed to know someone who had gone through it but no one had gone through it themselves. Finding this site helped me to not feel alone. To hear real people share their experience brought comfort and hope. If you are struggling please take the time to read as many post as you can. Hailey is now %100 better. She was only in the hospital 3 weeks after only having one surgery. The surgeon also made her a belly button. So now we tell everyone she has a custom or designer belly. I know how it feels to hear there is something wrong with your baby, but i also know how it feels to have hope and to finally get relief. Please know that you are all in my prayers. There is hope. Happy Holidays.

Brand new support for parents with Gastroschisis babies in Australia!

This is what it is all about, support, a reach out from parents who have experienced the gastroschisis condition first hand and are willing to help others. There is no reason why any of our hundreds of members here can`t occasionally stop by the Gastroschisis Support Group, Australia and help out with a few answers there as well.

Like me April has been inspired to help, so stop by and add your stories to her website too.

Dean

hi im 20 years old, and had gastroschisis when i was born too. ive always hated my scar as it is very noticible and about 3 inches long and quite deep, i had a lot of friends at school and was quite popular, but i never showed anyone my scar only my really close friends, i used to get so scared that people would see my scar that even in summer when it was red hot i would wear a big jumper! i always got my mum to write me a note for PE when at school because i didnt want to get changed in front of other people! Ive always felt ashamed about my scar! I didn’t have a stable boyfriend until I was nearly 18, I became pregnant soon after and was so ashamed of showing my stomach to strangers that I didn’t tell anyone (accept my boyfriend) that I was pregnant untill I was 6 months gone (I didn’t have a bump) I finally told my parents and had tests but because it was so late on into the pregnancy, they missed that I had a urinary infection and gave birth at 31 weeks.Now that I have had a baby ive put on a bit of weight from 8st to about9½/10st my scar had become even more noticeable. Ive been diagnosed with depression and am on antidepressants but these tablets just don’t help!!Does anybody know if I can get corrective surgery on the nhs!

Please help

Thanks

I wanted to ask those parents who have already taken their babies home if any of you guys have had a situation in which the baby kept putting out to much output.. because my baby keeps putting out the fluids and she has 16 days operated already and i just dont know how long it wil take till they can feed her..

any feed back thanks