Thank you for youre comments :)

Hi thanks everyone for lovely and informatic comments . This has helped me a lot i really do appreciate it , im glad everyone’s babys condition has ended in a happy ending .

Thanks again

sophie x

Sixteen Years ago I was born with Gastroschsis.

I was born with Gastroschisis sixteen years ago on the 3rd of October. In a way it had and still is maken my life hard. My operation left me with a scar right down my stomach leaving me with no belly button im very self consious and have been bullied about it most my life. It doesnt stop me having lots of friends or doing things most teenagers do but if someone makes fun of it or that it really does bring me down, and takes me a while to pick myself up again. Other than that my operation was successfull after a month in hospital my mum got to take me home, she encourages me not to hide it and be ashamed but to love who I am and everything about myself. Id love to here from someone that also had gastroschisis i never have spoke to anyone before xxx

Incoming search terms for the article:

• had gastroschisis at birth and stomach turned again

Bobby born June 2005

My son bobby is four years old. I found out bobby had Gastroschsis at our 1st scan, the doctor was reassuring and told us that it wasn’t a problem, that he would be able to have surgery to pop hid bowel back in, and that would be all. My pregnancy continued well until at 33wks I went into labour, due to how early it was I was given drugs to stop the birth & remained in Chelsea Hospital being monitored daily, 5days later I noticed I hadn’t feel bobby moving in a few hours & when I was put on the heart monitor his heart rate was dropping so I had an emergency c-section.
An hour later bobby had his 1st surgery it went well and he returned to intensive care. Bobby had jaudince and relied on TPN as his only means of fluids. He remained this way for at least 6wks, he couldn’t accept breast milk etc.
Bobby started to show complications and was taken into surgery again, his bowel had created adhesions where the bowel becomes matted together and they had to cut this away, part of his bowel had also died, so they cut out 8cm of bowel, they did not reconnect the two parts together straight away instead the created two stomas, inwhich for another 6wks bobby had a colostomy bag attached to his stomas, he was gradually built back up on fluids and still could not tolerate milk, nor did he have the ability to swallow fluids. After 6wks, he was taken back in for his 3rd surgery to reconnect his bowels. Bobbys liver was under alot of strain and he was very yellow in colour.
In total bobby stayed in hospital for 6months, he came home with a nasual gastric tube and was feed partly digested milk threw this. For another 6 months he remained having to solely rely on his tube for food, I managed to progress his swallowing so he was able to start holding down liquid and solid foods.
Eventually after a year bobby no longer required his feeding tube. He was given extra medicines to provide him with more fat in his diet as bobby found it hard to put on weight.
Four years on and bobby still required medicines and regular check up’s. At face value he is a beautiful, clever happy little boy. But inside he has problems with his bowel, which affect his digestion, the regularity of passing stools and requires added vitamins & nutrients as he is unable to absorb enough from his food.
My hope for the future is that bobbys bowels functions would regulate so he felt like a normal little boy.

Bobby may be a rare case & during bobbys stay in hospital we met many babes with Gastroschsis some went home within weeks others stayed longer than bobby did. All I would say is remain positive, life can throw alot at you but you have to be stay positive for your child. If anyone wants any advice please feel free to email me x x

Pmayes@handpicked.co.uk

Destiny born with gastros on may 16 2009

hey everybody i just would like to say to all those women with a baby with gastros on the way not to worry everything its going to be great and u baby will be as normal as anyother baby the only thing with this conditions its the first two months when those babies dont accept the feedings and its all about bieng pacient. my baby girl its now four months and we have not seen anyother complication since the second surgery she got for a hernia two months ago. so dont worry and enjoy ur babies if u would like to see pictures of our babe and what we went trough let me know my email is jesusherrera_23@hotmail.com i will love to share our story with u friends thank u and god bless everyone

Hello

Im glad to finally see a gastroscisis page that I can talk to people. My daughter Larissa was born with it. She’s 7 months old now and you wouldn’t even be able to spot the difference between her and a “normal” baby. My biggest tip would be to ask questions and ensure everything is being done right. Also get as much rest as you can, I know its difficult but do try.

Hailey' Here

Well it’s been a long road already and we have just started. Hailey was born on September 29, 2009 via c-section. We were scheduled for October 2, but after noticing a change in her movement my doctor decieded it would be best to take her out that day. Iwas able to see her for a few minutes in the OR and the nurses wheeled my whole bed into the NICU so I could visit before she went in for surgery. We were surprised to see that not only were her intestines out, both small and large, but also her stomach and colon. It seemed like so much. She did great! the doctor was able to close everything in one surgery. So far her progress has been steady. They have removed the breathing tube, two of the three IV’s and stop all pain meds. She has a pic line, which took several tries to get in, but is working now. She appears to be hungry now all the time we are not able to feed her yet as we are waiting for the doctor to give us the go ahead. I will keep you all posted. Thank you for all your prayers.