412 members of gastroschisis.co.uk

Just over 2 years of this website has seen it grow beyond the normal forum of gastroschisis members into a very close nit community of parents that have experienced the condition into a very supportive and protective group that will always look after those new to the condition.

We (all members and me included) have never sought funding, nor will i ever seek renumeration for this website as i like you search for the answers or answer to the question we all ask: WHY?

Thank you one and all for all of your hard work for the Gastroschisis condition, whether you are raising funds for looking into research or you are looking for advice, or somebody to talk to in the same situation or looking for answers or like me you want to give answers. We are still here… if you are feeling low.. isolated… is this happenning to me.. is there anyone else out there feeling the same way i do… who can put my mind at ease…

YES WE CAN

We have 412 members on this site right now that can hopefully help you guys new with the Gastroschisis condition..you are not alone we are HERE.

There are a number of us that have experienced Gastroschisis firtst hand,from a parenting point of view and those of us growing up with Gastroschisis, through to the exceptional few that were pioneers in surviving the condition from more than 40 years ago… just ask.

If you are new to this site i originally started it as i have previously mentioned as a search for answers for my own daughters entrance to the world. Tanisha is nearly 8 years old (11th December), but as i write this i am still discussing the whys and what for`s …. even now we still discuss as to why the geneticist never quizzed me as the father about my history … nor asked me for a sample of one of my locks of hair.

Why as the father and obvious genetic route and trackback was i not asked about my social involvement?

Sure, i had never taken drugs, yes i smoked, no i never lived anywhere near a nuclear smoke stack or chemical waterworks and no i never went to Mars but …… i was never asked….. why?

For and behalf of all parents and soon to be parents of www.Gastroschisis.co.uk

Dean