Gastroschisis(gas.tros.chi.sis) Support and Resources

Baby Lilly decided to arrive by emergency c-section on 11th June @ 4.23am weighing 5lb 12oz. 

She is absolutely gorgeous!! 

They whisked her away as soon as she came out, I got a little peek before she left.  I got to see her a few hours after her operation and she had a silo pouch and looked extremely swollen and puffy which they said was from the drugs to paralyse her.  Everyday she looked so much better.  She has been given a long line and is still on morphine etc.  But she was taken off the ventilator today, although she will be back on it Friday when they do the closure operation.

She’s a little fighter and a little squaker at the moment!!  I feel like i’ve known this little girl for ages and it’s not even a week.

It is jusy so worrying.  Not knowing what to expect and not being able to help in any way. 

The first time I left hospital for a few hours to go back home I cried all day coz I didn’t want to leave her on her own.  The nurses here are brilliant and I know she is in the best hands.

I am now staying in accomodation at the hospital but will be going home on the weekend which I am dreading coz I know I will be so upset.  We will be coming up every day to see her but I just hate leaving her.

Did you all feel the same?

I had a scan yesterday (i’m currently 34 weeeks) and they said that the bowel was dilated inside and out.  She said this is common as the room is getting tight in there.  Is this right?  I also had a date to get induced at 38 weeks.  I just cannot wait for his worry to be over and for little one to get on the road to recovery.

Hi,

I had a scan at 12 weeks which showed that he baby had a ‘prominent cord insertion’ and was re-scanned at 15 weeks which was yesterday.  They said that the baby has Gastoschisis and referred to a specialist hospital next week.

I am absolutely petrified! Am crying uncontrollably.  I know it will be ok, well hopefully but am just so worried.

x