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July 17, 2010

Baby J Gastroschisis story

I found out our little baby would be born with gastroschisis at an anomoly scan at 16 weeks. We were advised there was a possibility the intestines may go back inside so we were sent for another scan however at week 18 it was a confirmed case. After that I had a further scan at 20 weeks and scans every 2 weeks thereafter. At a scan at 28 weeks the consultant was concerned about the growth of my baby and the amniotic fluid so it was recommended to have scans every week and after a further 4 more scans, the consultant was happy with the growth. I am now 32 weeks pregnant and plan on being induced at 38 weeks. Due to my location my care has been referred to the Womens Hospital and the baby will be cared for at the Childrens Hospital. We have been for a tour around the Childrens ward today and there was a gastroschisis case in, it was a little baby girl born at 36 weeks. She had only been born a few hours when we were there and had already had the surgery she needed. It put my mind at rest at just how caring all the staff were and the ward did not seem scary at all! We also met our paediatrician who will be performing the surgery who put our minds at rest with how many cases he had dealt with and confirmed the average recovery time is 6 weeks. We were also lucky enough to meet a 2 year old girl who was born with gastroschisis and it was great to see just how she was like any other 2 year old, running round and playing with all the toys.

I now only have 6 weeks left and in 10 days will be scanned 2-3 times a week. I just want baby to arrive now and know how severe the case is and get an idea of how long we will be in the Childrens ward for. If anyone wants to contact me for advice if you have recently been diagnosed with gastroschisis please feel free to do so at j6nnp13@hotmail.co.uk.

Mrs J

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