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June 13, 2008

2

cali-grl

My name is antoinette. I am 25 yrs old. I was born on Halloween day( 10-31-82) with gastroschisis. I am extremely happy that I have found this web site. I thought I was the only one born with this birth defect. I have always wanted to meet and talk to someone about this defect.

Living with this has been very tough for me being the one child born out of four kids with this abnormality. I have so many questions about this defect. Unfortunatley I wasn’t blessed with having loving parents there to educate me on gastroschisis.

I still have to live with medical problems because of the large anount of intestines lost at birth. When I was 18 yrs old I was able to become independant and thats when I started to slowly learn about this birth defect. I was hospitalized for the first 6 months of my life. I am very insecure about my body becuase of the gigantic scar across my stomach. I wish I could wear a 2 piece bathing suit and feel attractive.

Sometimes when I am dealing with my life long health problems, I feel that this is such a burden on me. In the end, I know there are blessings in disguise and I believe this is one of them. If it wasn’t for being born with gastroschisis then I know I wouldn’t be as strong as a person that I am today.

2 Comments Post a comment
  1. Nicklemarie
    Aug 20 2008

    Hi Antoinette!!

    My name is Nicole and I am also very happy to have found this website as I dident know anyone either growing up who this had happened to and my parents dident care enough either to tell me about it I just thought for the longest time that I was weird because I dident have a belly button :) anyways you seem to be around my age ( Im 22 ) and have had some medical problems associated with this defect. I would love to chat with you more about it if you are up for it… My email is Bittersweetone@msn.com I hope to hear from you :)

    Nicole

    Reply
  2. lacey
    Sep 7 2008

    hello,
    i’m lacey and i am very happy to find this website also. i have never met anyone with gastroschisis either! i’m 17 i have the same scar all the way down my stomach too nobody has ever said anything bad about it which i am glad about. i used to be self conscious about my scar but i can now wear a bikini and everything it likes it’s not even there so don’t worry! feel free to wear what you want and show it off!! no guy i have ever been with has cared. it is pretty cool to be the only one to say you don’t have a bellybutton a pretty good conversation starter. but i was hoping we could talk sometime so i can finally have someone who knows what i’m going through to talk to. I also have some medical problems because of the defect as well. too many vitamins and protein drinks it’s not fun. well if you would like to talk just e mail me! misslacey14@msn.com

    Reply

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