Gastroschisis

Earlier this year Sonia76 submitted a story posing the question of a rare occurance of 5 babies within the same street being born with Gastroschisis including her own daughter Mikka. Following on from local media coverage back in February, Kent News continues the coverage with a report which refutes the cluster of cases. “An NHS

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About Dean

I set this website up in 2007 for those of us who never really had a place to share our experiences about Gastroschisis, since then the website has evolved into what you see now. Read Tanisha's Story I am the one to shout at when things go wrong with this site.

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I was 20 years old when I had my son, Max. When I was 19 weeks pregnant, we found out he had gastroschisis. My mother, two younger sisters, and my fiance came with to the ultrasound to find the sex of the baby. After the ultrasound, we met with my doctor. He reviewed the pictures,

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About samjustice

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Hi. My son was born with Gastroschisis and spent 3 months in hospital, since then he hasn’t had any health problems. He started secondary school in sept and I have just found out he is being followed by some kids laughing at him and telling him to show them his belly ( he is also

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About jotreloar

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just reading some of the posts i noticed they were all pretty much success stories. I had my baby in 1994 a little boy, i was diagnosed with the condition on my 10 week scan and made regular trips to liverpool hospital for specialist scans. i was 20 years old my first child and very

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About sweetsgenie

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Hi, My name is Kori and I am currently a 20 year old survivor of Gastroschisis. When I was born, the doctors had no idea that I had this condition since the ultrasound tech did not pick up on my floating bowels. I was rushed to the ER right after delivery and from the age

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About kseyffart

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Hi I posted back in January 2009 when I had my daughter Mikka, who I would like to say is doing great. I am trying to find out if there are any cases in the Northfleet area of kent, recent or old I would like to hear. As we have 5 cases in one street

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About sonia76

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Hello I was born with Gastroschisis in 1985 in St. Mary’s Hospital in London, I was immediately moved to great Ormond street hospital for specialised care. As Well as Gastroschisis i was also born with Intestinal malrotation to complicate matters. The surgery was successful but there were complications in closing up my stomach. unfortunately, they

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About Pasquale

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I am happy to see so many posts. I don’t want to bring anyone down with my story but I need to tell it. I had what seemed to be a pretty normal pregnancy. I was a nurse at the time and worked in a nursing home. Before I found out I was pregnant I

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About Anna

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Hi my names jessica, im 18, and i was born with gastroschisis on jusy 5th 1992..as most people on here i dont have a bellybutton and also have a scar. although my scar is not as sevear as some on here- its about 2-3 inches where a vertical where a normal bellybutton would be- its

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About jessiicahh

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My name Is chelsey, I am 19 years old. I was born with gastroschisis and have never met or talked to anyone else that was born with the same thing. I’ve never seen any baby pictures of myself when I was born because everything got stolen. I have a huge scar from my hip straight

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About chelsey0827

My name is chelsey. I'm 19 years old and was born with gastroschisis. I have a scar straight down to my hip all the way up to below my chest. I have no bellybutton as well. I don't have any health problems because of gastroschisis but I still am curious to if I can get pregnant or not. Still a mystery I suppose. I haven't ever met anyone with the same thing ad me nor have I talked to anyone with gastroschisis. I'm interested in getting to know and hear others stories.

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seems most posts are dealing with scars and mothers to be, but what about the complications later in life. i went through two surguries in my 20′s not to mention the two within the first two months of life. as i have reached 30 i have come to find it becoming more difficult to stay

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About buttons

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Hi, im 22 and was born with gastroschisis. I am currently trying to get reconstructive surgery because i hate my scar (and i know people say embrace it but thats not going to happen, its causing me lots of depression and has from when i knew i was different) Has anybody had reconstructive surgery. Did

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About kirsty

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I have noticed more and more that a few of you are wanting to contact each other via Facebook, twitter etc so along with a brand new profile box that goes at the end of everyones contributions you will be able to see links to the contributors facebook, twitter, Google+ etc. You will also be

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About Dean

I set this website up in 2007 for those of us who never really had a place to share our experiences about Gastroschisis, since then the website has evolved into what you see now. Read Tanisha's Story I am the one to shout at when things go wrong with this site.

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Hi all, it’s not often I post, I am more in the background approving posts and comments and generally nodding at all of your stories when they have been so similar to ours. A quick update to the changes to the site over the past few days, you can obviously see the new design and

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About Dean

I set this website up in 2007 for those of us who never really had a place to share our experiences about Gastroschisis, since then the website has evolved into what you see now. Read Tanisha's Story I am the one to shout at when things go wrong with this site.

• Web
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• Twitter
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• Google+
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We found out about a month ago that our baby has Gastrochisis an after struggeling with this for a period we decided to activly gather as much info as possible but I have a few questions that would love some 1 who has gone through it all themselves to comment on: First of all my

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About Frances

Hi me and my partner found out about a month ago at our 12 week scan that our baby has Gastrochisis. Obv this tore me apart an at first i couldnt think of anything else apart from the suffering. After doing alot of research and reading alot of other peoples storys we can now see the light at the end of the tunnel although we no we all hav a long journey ahead.

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Has anyone had genetic tests done in relation to Gastroschisis – if so what tests? I read something on a post about parent’s hair sample testing but can’t find the post now. Has anyone done this? How long after the baby is born is it done? About baggageMore Posts (3)

About baggage

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I was born with Gastroschisis in 1991 – my intestines were outside of my body and I underwent immediate surgery after birth to place them back inside. It wasn’t handled like in most cases where the intestines are allowed to fal back in slowly & I have a scar the entire length of my abdomen.

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About jenajoy

Almost 20 yrs old, born with gastroschisis in 1991 in Long Beach, CA, USA. I was born @ 28 weeks gestation and weighed 2lbs - i haven't had any complications with my scar growing up that I can remember. It has always been more mentally difficult at times, far more frequent than physical pain. I am currently married and expecting my first son this September(:

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My son was diagnosed in utero with Gastroschisis at 14 weeks. It was devastating news for us, we had a history of miscarriage and as a result we were having frequent scans, up till then waiting for a scan was terrifying, we kept thinking there would be no heartbeat like with our other pregnancies. Then

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About baggage

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This is my first post. I haven’t posted my story yet, but hope to shortly when I have time – briefly our son of 7 months was born with Gastroschis – we spent the first 9 weeks in hospital. He is exclusively breastfed and doing wonderfully well. The reason I am posting is we would

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About baggage

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Hi, I’m 18 and was born with gastroschisis. I’ve been quite ill recently firstly with really strong lower stomach pains which caused me to become really upset and sick. I was then diagnosed with glandular fever and got the same stomach pains again. I don’t know whether my immune system is down at the moment

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About katie-brem

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