Comments for Gastroschisis http://www.gastroschisis.co.uk Gastroschisis Support, Resources, Videos and Member Stories Wed, 01 Sep 2010 04:57:04 +0200 hourly 1 http://wordpress.org/?v=3.0.1 Comment on Having "belly buttons" made as an adult! by sara http://www.gastroschisis.co.uk/belly-buttons-adult/#comment-427 sara Wed, 01 Sep 2010 04:57:04 +0000 http://www.gastroschisis.co.uk/?p=312#comment-427 my names sara. Im nineteen years old and was born with gastrochesis aswell. Growing up, eveyone in my family has always tryed to bring out the posistive side in it. Iv reached a age in my life that i do really want to get it fixed. I AM self-conscious about it; and i feel that i wont stop being that way till i do something about it. Summer time, when all my friends are at the beach or pool parties i cant go to, im at home with my fake cold i invented or "working". I just wanna be comfortable in my own body. I live with my father and he want nothing to hear about me getting surgery. Also, to top that, im pretty sure he shouldnt have to pay for it. Iv secretly had a job for a while for this reason. Hopefully by the end of this year. ill find out if i have enough for it. I recently met a woman who was telling me about her surgery and the price of it. She got hers in Colombia. Well point is, i dont even know where to start looking?! my names sara. Im nineteen years old and was born with gastrochesis aswell. Growing up, eveyone in my family has always tryed to bring out the posistive side in it. Iv reached a age in my life that i do really want to get it fixed. I AM self-conscious about it; and i feel that i wont stop being that way till i do something about it. Summer time, when all my friends are at the beach or pool parties i cant go to, im at home with my fake cold i invented or “working”. I just wanna be comfortable in my own body. I live with my father and he want nothing to hear about me getting surgery. Also, to top that, im pretty sure he shouldnt have to pay for it. Iv secretly had a job for a while for this reason. Hopefully by the end of this year. ill find out if i have enough for it. I recently met a woman who was telling me about her surgery and the price of it. She got hers in Colombia. Well point is, i dont even know where to start looking?!

]]> Comment on Gastroschisis.co.uk 1st Anninversary by danielle http://www.gastroschisis.co.uk/gastroschisiscouk-1st-anninversary/#comment-426 danielle Sun, 29 Aug 2010 13:15:01 +0000 http://www.website-by-design.co.uk/gastroschisis/?p=62#comment-426 my names danielle im 17 and have no belly button when your younger its such a big issue but as you get older people look at it more maturly and accept you for who you are so dont worry girls it will be fine and you are just as normal as anyone else facebook me - Danielle Quail my names danielle im 17 and have no belly button when your younger its such a big issue but as you get older people look at it more maturly and accept you for who you are so dont worry girls it will be fine and you are just as normal as anyone else facebook me – Danielle Quail

]]> Comment on I was a gastrochisis baby by Malynda http://www.gastroschisis.co.uk/gastrochisis-baby/#comment-425 Malynda Thu, 26 Aug 2010 10:12:00 +0000 http://www.gastroschisis.co.uk/?p=87#comment-425 I was born in 1972 with gastrochisis. I am now 38 am am starting to have complications. I recently had to have my gall baldder removed and surprise...things were not where they should have been. My 45 min surgery doubled in time. The surgeon told me there was a lot of scar tissue, and I am having a rough time healing. I am trying to find out what I can expect for the future. I have many adhesions and lots of scar tissue. I have always had bowel trouble and weight issues. (don't know if that has anything to do with the gastrochisis). After six years of trying, I was able to give birth to two beautiful children (three year apart), but was told a c-section was out of the question. For several years now I have been having "girl" trouble, and would love to just get a hysterectomy and get it over with, but no one will touch me. What to do??? I was born in 1972 with gastrochisis. I am now 38 am am starting to have complications. I recently had to have my gall baldder removed and surprise…things were not where they should have been. My 45 min surgery doubled in time. The surgeon told me there was a lot of scar tissue, and I am having a rough time healing. I am trying to find out what I can expect for the future. I have many adhesions and lots of scar tissue. I have always had bowel trouble and weight issues. (don’t know if that has anything to do with the gastrochisis).
After six years of trying, I was able to give birth to two beautiful children (three year apart), but was told a c-section was out of the question. For several years now I have been having “girl” trouble, and would love to just get a hysterectomy and get it over with, but no one will touch me. What to do???

]]> Comment on 34 weeks now by Louise http://www.gastroschisis.co.uk/34-weeks/#comment-424 Louise Wed, 25 Aug 2010 20:09:40 +0000 http://www.gastroschisis.co.uk/?p=854#comment-424 I managed to make it to 35 + 5...all the people in the children's hospital with me who's babies had gastroschisis were around that mark...some a little earlier. I managed to make it to 35 + 5…all the people in the children’s hospital with me who’s babies had gastroschisis were around that mark…some a little earlier.

]]> Comment on Born with gastroschisis following long term effect at 18. by karl http://www.gastroschisis.co.uk/born-gastroschisis-long-term-effect-18/#comment-423 karl Wed, 25 Aug 2010 06:00:11 +0000 http://www.gastroschisis.co.uk/?p=858#comment-423 hi i have the same you go and i amonly 18 years old 1991 born add me msn we can talk karlsammut3hotmail.com hi i have the same you go and i amonly 18 years old 1991 born add me msn we can talk karlsammut3hotmail.com

]]> Comment on Can i get surgery free on nhs? by kayla http://www.gastroschisis.co.uk/surgery-free-nhs/#comment-421 kayla Sat, 21 Aug 2010 01:22:43 +0000 http://www.gastroschisis.co.uk/?p=577#comment-421 aww i love that saying :) aww i love that saying :)

]]> Comment on Can i get surgery free on nhs? by kayla http://www.gastroschisis.co.uk/surgery-free-nhs/#comment-420 kayla Sat, 21 Aug 2010 01:19:27 +0000 http://www.gastroschisis.co.uk/?p=577#comment-420 i also have this condition um the doctors where telling me i could get a surgey with it looking like a line also?? um does he also have a bellybutton?? or is it just a line? sry im new to this and have never met anyone with this condition please email me if u will thanks love kayla wishfulzen@yahoo.com i also have this condition um the doctors where telling me i could get a surgey with it looking like a line also?? um does he also have a bellybutton?? or is it just a line? sry im new to this and have never met anyone with this condition please email me if u will thanks
love kayla
wishfulzen@yahoo.com

]]> Comment on Looking for some personal stories about gastroschisis with liver exposed by Ava http://www.gastroschisis.co.uk/personal-stories-gastroschisis-liver-exposed/#comment-419 Ava Wed, 18 Aug 2010 13:05:08 +0000 http://www.gastroschisis.co.uk/?p=835#comment-419 I'm 15 weeks pregnant. At my ultrasound at 14 weeks my doctor seemed concerned because the abdomen was enlarged. He said it could either be a hernia, or Gastroschisis. He said he needed to send me to a specialist to seek further reviewing. When I went to the specialist at 15 weeks they gave me bad news. He told me I had gastrochisis and that it was so bad that there was no hope. My babys whole stomach is out starting at his heart. I have to see a surgeon soon for a second opinion. I have tryed to find a story like mine but I have only found stories with the small intestines and liver out. Have you heard anything like my babys? I’m 15 weeks pregnant. At my ultrasound at 14 weeks my doctor seemed concerned because the abdomen was enlarged. He said it could either be a hernia, or Gastroschisis. He said he needed to send me to a specialist to seek further reviewing. When I went to the specialist at 15 weeks they gave me bad news. He told me I had gastrochisis and that it was so bad that there was no hope. My babys whole stomach is out starting at his heart. I have to see a surgeon soon for a second opinion. I have tryed to find a story like mine but I have only found stories with the small intestines and liver out. Have you heard anything like my babys?

]]> Comment on Seeking Advice by Dean http://www.gastroschisis.co.uk/seeking-advice/#comment-418 Dean Tue, 17 Aug 2010 14:47:45 +0000 http://www.gastroschisis.co.uk/?p=89#comment-418 Depending on where the Gastroschisis has formed, it`s not a "losing" of the belly button it is just the place where the repair was made, so when the protruding organ is replaced the surgical scar forms a kind of belly button but not in the way we all associate a belly button to be. As far as our babies growth there is no set time to say when it will slow down or speed up, many gastroschisis babies are supposedly smaller or weigh less in comparison but this is not always the case. Depending on where the Gastroschisis has formed, it`s not a “losing” of the belly button it is just the place where the repair was made, so when the protruding organ is replaced the surgical scar forms a kind of belly button but not in the way we all associate a belly button to be.

As far as our babies growth there is no set time to say when it will slow down or speed up, many gastroschisis babies are supposedly smaller or weigh less in comparison but this is not always the case.

]]> Comment on Seeking Advice by Rebekah http://www.gastroschisis.co.uk/seeking-advice/#comment-417 Rebekah Tue, 17 Aug 2010 14:38:01 +0000 http://www.gastroschisis.co.uk/?p=89#comment-417 Hello! I am currently in my 18th week and found out 2 weeks ago my baby has gastroschisis. I have a few questions if anyone can help! First does every baby with gastroschisis loose their belly button and why? Does it depend on the surgen? Also, at what point does Babys growth slow down? Right now its In the 64% but is there a week wher it starts to slow down? Thanks for your input! Hello! I am currently in my 18th week and found out 2 weeks ago my baby has gastroschisis. I have a few questions if anyone can help! First does every baby with gastroschisis loose their belly button and why? Does it depend on the surgen? Also, at what point does Babys growth slow down? Right now its In the 64% but is there a week wher it starts to slow down? Thanks for your input!

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