Hello,

I have  just come across your wonderful website ! I only wish there was a site just as this one when i found out my son had gastroschsis back in 1996  ! there was very little information and no  web site so to speak back then.

My son Daniel turned 13 on the 1st January 2010.

Reading the stories and letters on this site took me right back to being pregnant with Daniel , and remembering how petrified i was of this thing they called Gastroschisis.

Daniel was born in the ealy hours of  New Years Day 97 3 weeks early, a natural birth and weigihing in at 4lb 4oz, a tiny little doll, he was operated on within hours of entering the world and came  on to the neo natal ward around 8am covered in tubes which were all bigger than him and laying on what seemed like a giants bed !. Although being scared of the tubes and  alarms which were all over  little Daniel,  he  was determind to grow and come home quickly there were a  few scary times  followed by jandice but finally  Daniel started  feeding from me  and slowly the tubes, drips and all the equipment disappeared from his tiny body and he was free. Daniel came home exactly 2 weeks after he was born.

About Cardiff

More Posts (1)