To all the mothers who are having children with gastroschisis I want you to know they will make it! I am 20 years old, I was born with the condition and have been living the life of any normal college kid. Growing up with this condition it determined me to go into medicine. I have my Certified Nursing Assistant license, and am going to college to be a commercial pilot. I was told I would never fly due to my scars, told i would never have a girlfriend, told I would not make it past 12. Well there is hope, I am not afraid to show my scar of to women, I am flying airplanes everyday, I am 20 now way past 12. Mothers there is hope for your child, they will overcome anything. Tell them everyday to never hide the scar, When I was a little kid, I told people it was my battle scar from a shark, or now I say its a war wound from IRAQ, any story your kids can tell to make them comfortable with it works.


Hiya there just read your post. My little boy Kayne is 11 weeks old and was born with gastroschisis. He got home after only 3 weeks and apart from 2 hernia ops since he is doing great. When it was diagnosed in the womb at 18 weeks I was devestated and instantly googled the condition. I had to stop looking at one point because I was making myself more and more anxious.
When he was born and I seen him in intensive care in his little incubator with his silo bag I felt so guilty and thought what have I done but now I look at him and I am so proud of him and everything he has been through. I am going to definately teach him to stand tall and be proud of who he is and what he has been through. I will tell him that his scar means he is special and a fighter because he is and always will be
im so happy for you god bless to