Gastroschisis

(gas.tros.chi.sis) Support and Resources

Apr-18-08

6 years and smiling

Posted by Dean

My son Matthew was born at 34 weeks and wieghed 3lb 15oz at Bristol St. Michaels.  I was 20 years old and scared. Matthews gastroschisis was bad he had to have a blockage taken out when he was 3 weeks old.

He suffered from an extened abdomen for a very long time .He has chronic lung diease and every time he got a cold or flu we were back in intensive care the amount of times we were told that ‘He won’t make it through the night’.(famous last words from the doctors!)
Matthew finally came out of hospital 8 months later he was back and forth to the hospital for a while.

His chronic lung disease is handled with inhalers. He was diagnosed with amyoplasia last year, which means he has limited movement in his shoulders, arms and fingers. But i am glad to say that i am the proud mother of an extremly livley, healthy, intelligant and cheeky boy of 6 years old!

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