Gastroschisis

Hi i originally posted this on http://www.geeps.co.uk but id thought id post it on here as well.

Umm where do i start, i was born in 1986 with Gastroschisis which wasn’t picked up by scans, anyway to cut a long story short im now 21.

Something I have found recently is Fantastic support for parents that have children born with gastroschisis (well done you guys) but meeting people that are now 20+ that were born with gastroschisis seems increasingly difficult. This is probably due to the fact the internet was at an early stage of its life and the outlet for people to discuss such matters wasn’t there.

My Scar is about 11cms long and i must say looks fairy impressive , I have been offered plastic surgery but I wouldn’t change it for the world!

I have a ball of scar tissue on the left hand side of my scar with is about the size of my fist, If i get abit of a gut on me I have been told that the scar tissue will stick out and cause some problems , none which im worried about as I plan to stay in shape but it would have to be removed if that ever happened.

I have also had severe stomach cramps with has had me in a ball on the floor in tears, not fun but recently they have disappeared after around 4 years and a change of diet,, now I have to battle off the hayfever GRRRRR
I lead a very active life, I play rugby and I rock climb a fair bit too, so I can say that been born with gastroschisis hasn’t had a large affect on my life.

It would be great to hear from other people that have gastroschisis to see what experiences they have had, and what dumb questions doctors ask like

‘ So how long have you had gastroschisis for? ‘

I was born at The North Staffs hospital via Caesarian Section , from what ive been told there was an Egyptian doctor there at the time who was willing to leave me for dead, as he hadent a clue what was wrong with me ! , anyway the nurses complained, and i was taken to Birminingham Childrens Hospital to be patched up.

My parents were concerend as im sure anybody would be , i was filled full of feeding tubes and still have the odd scar knocking about ,one on my neck and one just above my right nipple , and one on my left arm , weird things ops , id say the scar is around 30 stiches.

Most Doctors are retards , yes they do a fantasic job but good god i wonder if i know more about stuff than they do !. I know that the nurses at Birmingham Childrens Hospital took photos of me for some medical text book or for some other medical purpose , maybe i should give them a bell and see if i can get my hands on them, thats if they still exist

Hope to hear from someone soon you can email me at spydermonster@hotmail.com

P.S Chicks dig scars