Hi everyone, this is our story. My son is 3 months old and was born with gastroschisis…
My son was diagnosed with gastroschisis at my 18 week ultrasound. I knew immediately what is was and from then on I had routine ultrasounds and spend the days researching and trying to stay positive.
I started seeing a very caring GP in addition to my local clinic and this extra care really helped me get through the pregnancy. Having the baby checked often really helped to ease my mind during the pregnancy, so for those pregnant now I’d recommend seeking as support as possible.
I was going to be induced at 37 weeks but my son decided to come even earlier and I had an emergency caesarian at 36+2 weeks. I delivered at a major hospital 3 hours from home who have paediatric surgeons on call so his gastroschisis was repaired within four hours after his birth. He had a primary repair and the whole thing was completed quite quickly, but I dont think the outcome would have been affected if he had to wait longer for his surgery.
My son had morphine for pain relief, then baby panadol but was off all pain meds by day 3. He was 5lb 12oz, 4 weeks early, and we spend 16 days in NICU. During our time in NICU we were so proud of him for going through what he had to and now he is a happy healthy 3 month old.
This has only been a short one from me for now but please feel free to contact me with any questions or support you may need. I also have photos if anyone would like to see some.
Hi everyone, this is my story, thanks for posting it Dean. My son is now 9 months old and is still doing great. No complaints whatsoever. He is getting to be a big and cheeky boy, who keeps me very busy getting his little hands into everything and anything. He is sitting up well but no crawling as yet. He can also say mum, dad and nan. We are from Australia, and his surgery was done at John Hunter Hospital, Newcastle, NSW. All the birthing staff and NICU team were amazing, you can tell those people really love babies for the love and care they give to your child, especially in the wee hours of the morning. My little man hated the bright lights in NICU and he used to wear these little felt sunnies! They had tape them to his head or he would not sleep! They also have little ear muffs for them as well.
Look forward to getting to know the other parents and parents-to-be, and adding more of our story along the way.
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