Gastroschisis

When I was 5 months pregnant with my son Kiwame Michael Wilson JR, I was told by my doctor the sonogram showed my baby had Gastroschisis. I was considered to be high risk.

That means I was to be seen by the high risk patient doctor all through my pregnancy. I was going to the doctor office twice a week. My son was supposed to be born on November 17th 2007, but I guess he decided he was coming on October 10th 2007. I gave birth to a beautiful baby boy at 4:30 am.

He weighed only 3 lbs and 5.9 ounces. He was my first child. Me and my fiance were proud parents to our son. The hardest thing was to see my baby with so many tubes inside his tiny body. But I knew they were there to make him better. My son had surgery on October 19th at 3:00 pm. I was told everything went great and he would probably be home sometime in December.

On October 24th at 1:49 pm my phone rang and it was the hospital asking me and my fiance to come to the hospital. When we got there several doctors and nurses surrounded our sons bed. He didn’t look so well and his skin color was purple.

Then at 3:05 they pernounced my baby dead. I was crying and in shock all at once I couldn’t believe my son had turned 2 weeks old the same day and died. I want to know why this happened when I was told several times he was ok and nothing was wrong with him even 3 days after his surgery.

The only thing I was told is my son was not breathing to fast and hard. The doctor took us to a room in the hospital and told me and my fiance our son had a collasped lung, a infection in his blood, and pneumonia. I couldn’t believe that my baby had all these problems and just now they find this on the day he died.

I want answers to how all this happened to a baby born at 34 1/2 weeks with Gastroschisis. Nobody I had spoke to about this birth defect told me any story about their baby or a baby dying from this defect.

Nobody ever told me my baby would deal with these complications after surgery. So I want to know why all of this happened to my son who was only with us for 2 weeks and then died.

All I have left is my son ashes, pictures, and my memories of his birth, his touch, his smell, his facial expressions, his beautiful eyes, and his smile. It’s only been 3 days since he’s been gone. I don’t even have his ashes yet. But I do know I will never forget my first born Kiwame Michael Wilson JR.

I Love You and will always think about you. Goodbye my son, my baby, MY LOVE!!!!!!!!