Gastroschisis

(gas.tros.chi.sis) Support and Resources

Apr-18-08

Layla

Posted by Dean

At 12 weeks I found out my daughter had Gastroschisis. She was delivered on october 6th 2006 at Hospital of the University of PA

She was treated next door at The Childrens Hosptal of Philadelphia. Layla stayed in the NICU for 4 weeks and was discharged. Since then we have returned to the hospital three times for stomach viruses. Although Layla is very healthy today she still relies on an NG feeding tube for most of her nutrition. The doctors and speech therapist originally told me it would take about a year for Layla to be able to eat and thrive on her own.

Well here a year later and i feel that there has been very little progress. Will my daughter ever eat on her own ?

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