Gastroschisis

(gas.tros.chi.sis) Support and Resources

Archive for the ‘Worldwide News’ Category

Apr-18-08

Gastroschisis.co.uk 1st Anninversary

Posted by Dean

It`s been close on a year now since i set up this Gastroschisis iniative and it is time to take a closer look at the success and/or failures of the website.

When i initially set it all up my thoughts were along the lines of having a useful Gastroschisis resource for parents to be and existing parents of babies born with this condition.\
Over the year i have developed it into an expanded resource encompassing research and development, a gastroschisis toolbar, videos, your blogs and at the very core of the site is your birth stories and experiences.

Having read so many at times heart wrenching accounts of the Gastroschisis condition it has given me a renewed enthusiasm to carry on developing the website further.

As i am writing this i have just approved the latest article added by Mel and her now 1 year old Daughter, Mel becomes our 148th member since i set the website up in May 2007 and reaching even the 100th member milestone seems like a double edged sword.

I am pleased that the website has reached out to so many but on the opposite to that i am saddened to think that there are so many cases of the condition.

Now for more good news.

The website in my eyes had become a bit dated in design and the functionality of the system i was using did not offer all of the features i wanted to offer to our shared community, so it is with great pleasure that i can now announce that the website has undergone a fresh lick of paint, i think you are going to like the new website i know i do, but of course i would say that wouldn`t i?

For all of the existing members i have sent you an email, you will need to re-register it is just as quick and simple as before.

The transition from the old design to the new one is now complete

Dean

Apr-18-08

Gastroschisis Increase in Norway

Posted by Dean

Gastroschisis births in Norway have risen by ten fold according to Anne Brantberg, medical director at the National Center for Fetal Medicine (NSFM).
“The incidence of Gastrochisis in Norway in the 1960`s was approximately one case in every 20,000 children, while Brantberg’s modern material indicates an incidence of one case in every 2,000 births”.

source: Adresseavisen