Gastroschisis

hi, i have a little girl called Ebony leigh, she was born with gastroschisis. after she was born they put a silo on around her bowels for a week then she had her operation which was a succsess. My daughter is now seven weeks old and still in SCBU.

She just wont tolerate her milk and is only on 1ml every 2 hours and her TPN to keep her nutrients up. It just seems every one who i have read about or spoke to with babies that have the same condition have only been in a few weeks. Its really fustrating i just feel like im missing out on her. I was just wondering if anyone else felt the same way it would be really good to hear a reply
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My son was born with Gastroschisis and has had an amazing recovery, having left Addenbrookes after only 13 days and no real problems other than very slow weight gain in the initial 6 months.

He is now on the 75th centile and 14 months old.

However he has lately started suffering with really bad constipation. This morning he almost screamed the house down trying to pass a stool. he has a reasonably balanced diet, and I try to give him prunes every few days, but he is still in pain at least once a week.

Has anyone else had this problem?

Hi, Me and my husband just found out about 3 weeks ago that our little girl has gastroschisis, They have been the worst three weeks of my life and I don’t know what to do! Apparently the doctor says that its a lot of bowel that she has outside the body, and all i can do is pray and cry for my baby to be ok… Can anyone out there help me? can you tell me if she will be ok? if she will have to undergo many more surgeries? I am very new at this, I did research and it completely broke my heart to see a baby like that. Please help.