Gastroschisis

hi, i have a little girl called Ebony leigh, she was born with gastroschisis. after she was born they put a silo on around her bowels for a week then she had her operation which was a succsess. My daughter is now seven weeks old and still in SCBU.

She just wont tolerate her milk and is only on 1ml every 2 hours and her TPN to keep her nutrients up. It just seems every one who i have read about or spoke to with babies that have the same condition have only been in a few weeks. Its really fustrating i just feel like im missing out on her. I was just wondering if anyone else felt the same way it would be really good to hear a reply
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My daughter was born with gastroschisis on 4th Nov 2007 by emergency c section at 37+1 weeks due to reduced foetal movements and a possible twist in the bowel. Luckily Ella was born with uncomplicated gastroschisis and there was no twist in the bowel.

Ella had surgery 9 hours after birth and after only around 35 hours on a ventilator, 5 days in SCBU and 9 days on the ward, Ella came home.

She spent a total of 15 days in hospital and since coming home has had no problems since! She is a very good baby and has been sleeping through since 9 weeks!

I know we were very lucky with our experience and I wish everyone the best. Feel free to contact me at emersonbrown@tiscali.co.uk for any advice or to chat.