Gastroschisis

I recently wrote a piece on my daughter, stephanie, who was born in june 1996.

She had Gastroschisis and was born at 38 weeks. She had her operation and treatment at Lewisham hospital in London.

I have noticed a few new parents on this website who are having a bad time with their news of diagnosis and treatment.

Please keep positive, it’s hard, I know. Gastroschisis isn’t as rare as it used to be 10-15 years ago and the treatment has vastly improved since then. Medicine is improving and the chances of survival rates with Gastroschisis babies are rising.

I’m sending with this post….a huge hug to you all.

Sherry Sleney x x x

It`s been close on a year now since i set up this Gastroschisis iniative and it is time to take a closer look at the success and/or failures of the website.

When i initially set it all up my thoughts were along the lines of having a useful Gastroschisis resource for parents to be and existing parents of babies born with this condition.
Over the year i have developed it into an expanded resource encompassing research and development, a gastroschisis toolbar, videos, your blogs and at the very core of the site is your birth stories and experiences.

Having read so many at times heart wrenching accounts of the Gastroschisis condition it has given me a renewed enthusiasm to carry on developing the website further.

As i am writing this i have just approved the latest article added by Mel and her now 1 year old Daughter, Mel becomes our 148th member since i set the website up in May 2007 and reaching even the 100th member milestone seems like a double edged sword.

I am pleased that the website has reached out to so many but on the opposite to that i am saddened to think that there are so many cases of the condition.

Now for more good news.

The website in my eyes had become a bit dated in design and the functionality of the system i was using did not offer all of the features i wanted to offer to our shared community, so it is with great pleasure that i can now announce that the website has undergone a fresh lick of paint, i think you are going to like the new website i know i do, but of course i would say that wouldn`t i?

For all of the existing members i have sent you an email, you will need to re-register it is just as quick and simple as before.

The transition from the old design to the new one is now complete

Dean

I came across a website while I was researching further into the Gastroschisis condition that really hit back home of how lucky some of us really are. 8 month old Christian Hall is need of intestine and Liver transplants and until he receives a donor he needs costly drugs to prolong the life of his liver.

Gastroschisis is a condition that has many different facets, no two cases of the condition seem to be alike and in baby Christians case only experimental drugs that have still yet to be approved by his countrys medical governing body will give him a fighting chance.

Read the full article by April Bailey on Aiken Today