Looking for some personal stories about gastroschisis with liver exposed
My husband Ryan and I went to highschool together and found each other at 3o years old and decided that we were keeping each other! We got married on February 26th in Las Vegas… planning on having a public ceremony shortly after. Plans changed…we both wanted a family and found out on April 14th that we were two months pregnant. We were extremely suprised but both extremely thrilled. At our first ultrasound they had no concerns….but when we had our 3month ultrasound the ultrasound specialist looked concerned and asked me if I’ve been bleeding…I answered no. Then she left the room and returned with our OB/GYN. HE said that our baby had a abdominal protrusion and he needed to send us to a specialist. We went to the specialist that evening and he said that it looked like a Gastroschisis however he wasn’t used to seeing the liver protruding as well.. I’m terrified but trying to stay positive. I need encouragement and have read stories on here and felt I may find a support group here throughout my pregnancy. My husband and I would like to ask if any of you have experienced a similar gastroschisi. They said they will be doing a MRI at 18 weeks to be able to see what is going on more clearly and then a amniocentisis. I don’t think I want to do the amniocentisis because it would add extra trauma to the baby’s situation don’t you think?? It sounds SCARY. If any of you can offer me a story, information, photos or anything. I’ll be ever so grateful. I am trusting in God…..it’s tough sometimes when I see the hundreds of babies that look soo healthy I think “why did this happen!” Please…just connect with me if you can. Thank you.
Edit: Story originally posted by stunner312
Congratulations on your first child! I know that it is very difficult to learn that your child has gastroschisis and it is equally hard to wait for months until your child’s birth.
My daughter, Emma, is approaching her 2nd birthday. She was born at Duke Hospital in NC. At the time of her birth her surgeon was so concerned about the poor condition of her bowel that he rushed her to surgery. She had a silo for 9 days and her closure surgery the following day. She was a fighter and came home after 3 weeks in the hospital. We kept a blog of our experience just before and in the weeks and months after her birth. There are pictures of her belly and her stay in the NICU. If you are interested, you can take a look at it http://babyonboard-dh.blogspot.com/
Like you, I did not get an amnio. We weren’t going to have an abortion and gastroschisis is rarely associated with any other defects, so it just seemed like an unnecessary risk.
I am happy to answer any questions you might have or just listen if you want to share your thoughts and concerns. My email address is cariesearls@hotmail.com.
I wish you and your baby all the best.
Ashley
I’m 15 weeks pregnant. At my ultrasound at 14 weeks my doctor seemed concerned because the abdomen was enlarged. He said it could either be a hernia, or Gastroschisis. He said he needed to send me to a specialist to seek further reviewing. When I went to the specialist at 15 weeks they gave me bad news. He told me I had gastrochisis and that it was so bad that there was no hope. My babys whole stomach is out starting at his heart. I have to see a surgeon soon for a second opinion. I have tryed to find a story like mine but I have only found stories with the small intestines and liver out. Have you heard anything like my babys?