confused

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Posted by kimberly | Posted in Baby on the way!, Birth Stories, Forums, Growing Up | Posted on 16-04-2009

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I am currently 23 weeks pregnant and was told at 17 weeks that my daughter had gastroschisis and was referred to nottingham hospital, i was wondering if anyone else has got any experiance with this hospital and how they dealt with your pregnancy, also i was wondering if anyone could tell me how long it is before the mother is discharged from hospital and the baby still in there as this is a major worry of mine as i live an hours drive away from the hospital but do not drive myself.

any advice appreciated

looking for answers!!

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Posted by debbie_williams | Posted in Birth Stories | Posted on 04-11-2008

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Hi, I am new to this site and I am 25 weeks pregnant with a gastroschisis baby.

The doctors have told me all along that I will be having a c section delivery in the best interest of the baby and that coincided with what i had read and made sense.

I have recently transfered to a new hospital where they are supposed to be more equipped to deal with the pregnancy but they are telling me I will have an induced natural birth. Has anyone had this and was it ok? I am very worried!

Looking for some answers :(

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Posted by Nicklemarie | Posted in Birth Stories | Posted on 20-08-2008

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Hi there,

My name is Nicole and Im 22 years old. I was born in 1986 with Gastroschisis, the defect was unknown to my parents or there physcians untill I was born. I had kinda a ruff childhood with being sick alot but not alot related to gastric functions untill about the age of 17, about then is when I started having problems with digestion,pain, bloating,constipation, all these really awefull, painfull, and uncomfortable things.  I felt like it would take my gut days and days to process anything properly, and that it was never doing a good job of it.   Soooo I saw a couple of physcians about my concerns and obtained the medical records and operative report from the day I was born as sort of a guide to what really “went down” on the day.  Come to find out that I had a defect with the stomach, pancreas, duodenum, colon, and the small and large bowel, all outside the abdominal cavity.  I gave this information to my physcian and they did some tests like a barium swollow to make sure the malroation of the bowel had been corected properly and there were no other internal concerns. the study showed that everything did indeed work “satifactory” was the word they used, but that it just took forever. They did say they belived there were some fair amount of abdominal adheasions that could be causing all these types of symptoms to come and go, and recomended plastic surgery to revise the scar and to take a look at the adheasions.  So I had that done when I was 18 and I felt a little relief after the surgery but not much. So now I’m 22 and still dont feel just right, I believe Ive done what I can and wonder if there is anyone else out there like me who has experienced these same types of issues with this defect later on in there life.  I feel strange not knowing whats going on inside of me it dosent feel like I think it should, and Im sick of being obbsessed about it !?!? I do watch what I eat and excersize regularly but nothing seems to help, ive seen at least 5 doctors  and they tell me that everything should be fine.. but it dosent feel fine !!

Is there anyone out there like me ??

New Granddaughter with liver outside of body

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Posted by Grandma | Posted in Birth Stories, Your Questions | Posted on 25-07-2008

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Our granddaughter was born at 37 weeks (induced) on July 22, 2008 with her liver outside of her body along with the gastroschisis.  She also has a cleft lip and palate.  She weighed 4 lbs 15 ozs and is 17 3/4 inches long.  I have read the post on here and am encouraged about the gastroschisis.

My question is, does anyone know of anyone born with the liver outside of the body also.  This really concerns us.  The doctors told us they handled it as delicately and as little as possible.  They placed it along with the gastroschisis in the silo.  I guess it is a wait and see game at this point and I know it has only been a couple of days since she has been born, but I was trying to get any information I could.  Please help if you have in any information I would appreciate it.

Support for Gastroschisis in Cornwall

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Posted by sthirlby | Posted in Baby on the way!, Forums, Your Questions | Posted on 11-07-2008

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Hi

I’m 20 weeks pregnant and my baby has gastroschisis. I’m currently living in Suffolk and go to Adanbrookes for specialist tests and monitoring. For a while I’ve been hoping to re-locate to Cornwall, and am now in a position to do so in the near future. I was wondering if anyone knows if there are any specialist units in the south-west, or what the general practice is for mothers living in this area?

Thanks in advance for any help!

Sarah