Gastroschisis

Hello all,

My name is Tracy and it is nice to see a supportive site such as this for gastroschisis. I was born on May 20, 1978 with this unfortunate issue. I am now 30 years old and very healthy! I wanted to write to let all of those parents out there know that your child can live a healthy life. I have a beautiful daughter that was born with no problems at all. Chloe is healthy and there was no sign of any issues during pregnancy or at birth.

Because my gastro was so long ago, I have a large 1 inch deep scar that runs from my breast-bone to my pelvis. The scar has always been a sort of medal for me and although babies today will have a belly button and very little scaring…still be supportive. My parents were wonderful at letting me know that I was unique and that was special. I remember as a young girl showing my friends my “cool” difference.

God bless all of the parents going through this now. Your babies are beautiful and it takes special people to deal with an issue like Gastroschisis. However, your babies can live full lives! The only issues I’ve had are blockages a couple of times in my life. I was 14 the first time a blockage snuck upon me and 26 the second.

I hope I haven’t bothered all of you with the fact that I’ve told my life story…but I know how worried I was thinking my child would have this. I can’t imagine how scared the parents of babies with this abnormality are. I’m sure every parent is scared for their future and the here and now. Feel free to ask any questions! I am very open about it.

Have a blessed week!

Tracy

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story added by froggieandone on 14 May 2007 within the Gastroschisis Birth Story category

Hello all My name is Kymmy My son was born 3/21/03 with gastro he is doing well now we have had alot of set backs in the begining with hernias alergies you name it.

Well He is truly a miracle I was supposed to have reconstructive surgery on my uterus before I could carry a child full term

(I had 9 miscarriages before he came long) they needed to take a tremendous amount of scar tissue out. But when I went to the hopsital for a severe migrain  and stomach pains the told me I was 3 weeks pregnant, I was happy at first untill I realized that,”Hey why am I getting excited and happy I wont carry for long”, So the docs put me on bedrest. I was doing well until I hit the middle of the 3rd month then

I started having contractions and spotting right away I thought the worst, but the docs put me on meds to stop the contractions and steroids for his lungs I went in for contractions at least once a week so they would mess with my meds. I lasted until 8 1/2 months then was rushed in for an emergency c-section cause his heart rate dropped dramaticaly then went almost off the charts.

Well sorry I went on and on but I love my little miracle and am very lucky to have him and he is doing so well. Thank you for listening to my story and I wish you all luck and am here if any one wants to talk.

Sincerely,

Kymmy

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Hi, my name’s Annette Serge & I’m from over in the USA. My baby was born with gastro on Aug. 30, 2007. It is now March 4, and we are still in the hospital.

Kaylee just got her 4th surgery to try to close her fistula 2 weeks ago. I was wondering if anyone had any problems with fistulas????

Please contact me if you have. Email is Nettex12@aol.com. Also I would like to know if anyone’s baby’s hole was closed with their umbilical cord. Please contact me asap!

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