Gastroschisis

My Grandaughter was born  with  scary birth defect and lost all of her intestines but seven inches. We were told she might not live a month. But God blessed us and now she is 16 months old. She is on Tpn therapy, and she also gets Omegavin from Germany. It has not been approved by FDA here in the states yet. She can’t eat because of the lack of a stomach. She throws up a lot. But she is the happiest baby you could ever meet. Please if there is anyone else out there that knows something about  life span for this , Please contact me at iaabac1@aol.com Thank you Shelia

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We have recently found out that our son and daughter in law are expecting a girl, that has Gastroschisis…..

…..quite a shock to say the least. However, we are all positive, but somewhat nervous of the delivery, and the surgery.

Can anyone alay our fears

Thanks Red

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