My sister had her first baby Aug 1. He was born with gastroschisis and finally got to go home Oct 1. He had a blood clot while in the hospital but it went away, he caught respiratory MRSA while on a ventilator which they decided not to treat, and they put him on rantidine, ursodol, iron, and vitamins which he is still currently on.
Tuesday he started having really black stools, dr thought it was due to the iron supplement so they lowered his dose and sent him bavk home. Now it’s Saturday, his stool is still black and now my sister is bringing him in because the blood clot looks like it came back. 
Do you guys have any experience with the iron/stool or the blood clots…maybe what treatment worked best?
i’m going to share this site with my sister, but if any mommies with gastroschisis want to email her with info or encouragement – my sister’s name is Alli and her email address is (well she has two, but i think she uses the first one tho) -
snoewhyte13@hotmail.com and miztalkalot@hotmail.com
thanks for any info you have! <3
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Hello Everyone, My name is Stepfanie and i’m 19 from Lancaster Pa. We found out in April that i was 18 wks preg. we are now going into week 28 and our baby is due September 20th. The only problem is that my baby was found to have “Gastroschisis.” i find it really hard to deal w/ this because they become/stay small babies. and currently (6/25/2008) the large intestine is swollen due to the amniotic fluid so i have to be checked weekly.
Anyone who has had to deal w/ this i’d like to talk and listen to what you have to say. I also have to go to a different hospital as planned w/ a c-section and depending on how bad the intestine gets, the baby would be a very early c-section and i’m just scared because I don’t know when it is too early for a c-section. Thanks!
Hi, my name is Jessica and my husband and I learned at 18 weeks pregnant that our baby had gastroschisis. They we’re unable to tell if the baby was a boy or girl due to all of the intestines and bowels in the way. Finally by amnio we found out our little baby was a girl.
They took Brooklyn 6 weeks early due to bowel dilation. She was born 4/27/01 at Baylor Dallas hospital weighing 5lbs 8oz.
She was on a vent for 1 day and spent 1 month in NICU until she could come home. Even though she has been hospitalized 7 times throughout her 6 years on this earth for pneumonia, asthma, rsv x 2 and influenza, she’s a happy, healthy, active beautiful girl.
We are currently having some issues with horrible constipation and her crying of stomach pain. She is on mirilax 1-2 times a day with not much relief. Today she had a CT scan to rule out obstruction or “kink” . She’s already had a scan a couple of years ago that showed malrotated gut and appendix up by the gallbladder but no obstruction.
This time the Dr. is more concerned because the miralax is not helping even when she was on it 3 times a day.
The CT tech came in in the middle of the scan today to call in the radiologist and said her stomach still had her breakfast in it from 7 hrs before and the barium was only through the small intestine, for her to walk around for 45mns to see if we could get it to the large intestine and they would rescan. Well when rescaned still no barium had moved.
We were sent home and now here I am stressing waiting for an answer. Has anyone else been through this with their gastroschisis baby or themselves? I wish I had found this board along time ago now I hope I can have some people to talk to that understand.
Thanks,
Jess
I came across a website while I was researching further into the Gastroschisis condition that really hit back home of how lucky some of us really are. 8 month old Christian Hall is need of intestine and Liver transplants and until he receives a donor he needs costly drugs to prolong the life of his liver.
Gastroschisis is a condition that has many different facets, no two cases of the condition seem to be alike and in baby Christians case only experimental drugs that have still yet to be approved by his countrys medical governing body will give him a fighting chance.
Read the full article by April Bailey on Aiken Today
