Gastroschisis » june

Baby Lilly has arrived!

TAdams — Mon, 22 Jun 2009 10:05:46 +0000

Baby Lilly decided to arrive by emergency c-section on 11th June @ 4.23am weighing 5lb 12oz.

She is absolutely gorgeous!!

They whisked her away as soon as she came out, I got a little peek before she left. I got to see her a few hours after her operation and she had a silo pouch and looked extremely swollen and puffy which they said was from the drugs to paralyse her. Everyday she looked so much better. She has been given a long line and is still on morphine etc. But she was taken off the ventilator today, although she will be back on it Friday when they do the closure operation.

She’s a little fighter and a little squaker at the moment!! I feel like i’ve known this little girl for ages and it’s not even a week.

It is jusy so worrying. Not knowing what to expect and not being able to help in any way.

The first time I left hospital for a few hours to go back home I cried all day coz I didn’t want to leave her on her own. The nurses here are brilliant and I know she is in the best hands.

I am now staying in accomodation at the hospital but will be going home on the weekend which I am dreading coz I know I will be so upset. We will be coming up every day to see her but I just hate leaving her.

Did you all feel the same?

Baby Lilly has arrived! is a post from: Gastroschisis

stephanie slade…aged 12

slade2sleney — Wed, 07 May 2008 09:25:19 +0000

I recently wrote a piece on my daughter, stephanie, who was born in june 1996.

She had Gastroschisis and was born at 38 weeks. She had her operation and treatment at Lewisham hospital in London.

I have noticed a few new parents on this website who are having a bad time with their news of diagnosis and treatment.

Please keep positive, it’s hard, I know. Gastroschisis isn’t as rare as it used to be 10-15 years ago and the treatment has vastly improved since then. Medicine is improving and the chances of survival rates with Gastroschisis babies are rising.

I’m sending with this post….a huge hug to you all.

Sherry Sleney x x x

stephanie slade…aged 12 is a post from: Gastroschisis

my daughter had gastroschisis

slade2sleney — Thu, 01 May 2008 08:56:31 +0000

I have a daughter who is going to be 12 in june 2008. she was born with gastroschisis. i found out she had the condition at my 16 week scan. i was nearly 17 years old and single. she was born in Lewisham hospital and had surgery to fix the problem straight after birth.

i saw her for the first time aged 8 hours old. she was fed orally for the first time aged 2 weeks and she came home aged 4 weeks. she is a happy and healthy girl who i still look at in amazement every day.

She doesn`t have a normal belly button but is aware of her birth and why she has a different tummy button. i want you all to know…those of you who are expecting a baby with gastroschisis or have recently given birth…that its not always a dark tunnel. it will be a long and difficult journey but keep positive and enjoy your special, brave child who you are blessed to have.

i am happy to email anyone personally. email me at sleney@hotmail.co.uk

sherry sleney

my daughter had gastroschisis is a post from: Gastroschisis