Gastroschisis
(gas.tros.chi.sis) Support and Resources
looking for answers!!
Author: debbie_williams
Hi, I am new to this site and I am 25 weeks pregnant with a gastroschisis baby.
The doctors have told me all along that I will be having a c section delivery in the best interest of the baby and that coincided with what i had read and made sense.
I have recently transfered to a new hospital where they are supposed to be more equipped to deal with the pregnancy but they are telling me I will have an induced natural birth. Has anyone had this and was it ok? I am very worried!
read comments (3)Born with Gastroschisis in 1978
Author: Tracy_Dawn78
Hello all,
My name is Tracy and it is nice to see a supportive site such as this for gastroschisis. I was born on May 20, 1978 with this unfortunate issue. I am now 30 years old and very healthy! I wanted to write to let all of those parents out there know that your child can live a healthy life. I have a beautiful daughter that was born with no problems at all. Chloe is healthy and there was no sign of any issues during pregnancy or at birth.
Because my gastro was so long ago, I have a large 1 inch deep scar that runs from my breast-bone to my pelvis. The scar has always been a sort of medal for me and although babies today will have a belly button and very little scaring…still be supportive. My parents were wonderful at letting me know that I was unique and that was special. I remember as a young girl showing my friends my “cool” difference.
God bless all of the parents going through this now. Your babies are beautiful and it takes special people to deal with an issue like Gastroschisis. However, your babies can live full lives! The only issues I’ve had are blockages a couple of times in my life. I was 14 the first time a blockage snuck upon me and 26 the second.
I hope I haven’t bothered all of you with the fact that I’ve told my life story…but I know how worried I was thinking my child would have this. I can’t imagine how scared the parents of babies with this abnormality are. I’m sure every parent is scared for their future and the here and now. Feel free to ask any questions! I am very open about it.
Have a blessed week!
Tracy
cali-grl
Author: so_cali roxstar
My name is antoinette. I am 25 yrs old. I was born on Halloween day( 10-31-82) with gastroschisis. I am extremely happy that I have found this web site. I thought I was the only one born with this birth defect. I have always wanted to meet and talk to someone about this defect.
Living with this has been very tough for me being the one child born out of four kids with this abnormality. I have so many questions about this defect. Unfortunatley I wasn’t blessed with having loving parents there to educate me on gastroschisis.
I still have to live with medical problems because of the large anount of intestines lost at birth. When I was 18 yrs old I was able to become independant and thats when I started to slowly learn about this birth defect. I was hospitalized for the first 6 months of my life. I am very insecure about my body becuase of the gigantic scar across my stomach. I wish I could wear a 2 piece bathing suit and feel attractive.
Sometimes when I am dealing with my life long health problems, I feel that this is such a burden on me. In the end, I know there are blessings in disguise and I believe this is one of them. If it wasn’t for being born with gastroschisis then I know I wouldn’t be as strong as a person that I am today.
Seeking Advice
Author: ashleyhudson
Greetings,
I am currently 25 weeks pregnant and have found the information and posts on this site very informative and helpful. I am happy that this site exists and my thanks go to those who created and maintain this invaluable resource.
At a recent ultrasound measurements were taken of my daughter and I was very worried to learn that she was only in the 3rd percentile for her gestational age. The doctors indicated that they would perform another ultrasound in three weeks to measure our daughter’s growth. They said that if, at that time, she is still under the 10th percentile, the term Fetal Growth Restriction would be applied to this pregnancy and they would begin twice weekly ultrasound monitoring. I was wondering whether any other parents of babies with gastroschisis have had a similar experience? Also, what is the typical birth weight for a baby with this condition?
At this same visit, we were given the opportunity to visit the NICU (neonatal intensive care unit) in order to see where our daughter would be cared for. We also met with the pediatric surgeon. While we were grateful for the opportunity, it was very difficult for us to imagine our daughter stuck in a hospital with tubes and wires everywhere. I wonder if anyone who has already gone through this experience can offer advice on how to deal with this very difficult situation? Also, we have a 17 month old daughter at home and we are both very concerned about how to manage spreading our time between the hospital and still maintaining a sense of normalcy for our oldest daughter.
We appreciate any suggestions you might have.
Warmest Regards,
Ashley & Devlin